Two stories, one theme: The Welfare State

English: A typical credit card terminal that i...
English: A typical credit card terminal that is still popular today. visanet (Photo credit: Wikipedia)

The title says it all. A somewhat un-sexy subject, but one very much in the news at the moment, and in the days to come. This week, two stories really affected me for two reasons, first, interest the arguments involved, and secondly, because both may have a direct impact on me in the future.

The first: Welfare ‘credit-cards’

This is one that sounds simple. A good idea in theory to some; much loathed and feared by others. This week in the Guardian I read an argument for and one against against the introduction of benefit payments by ‘credit-card’. In conjunction with universal credit, these cards would contain all of a person’s benefit payments on my card, in my case at the moment, Employment and Support allowance (ESA) and Disability Living Allowance (DLA). Every-time I bought something, it would show up on the card. What about places that don’t take cards?

Another concern for me, is that as each transaction could be itemized as on a bank statement, there is the potential that someone could see all of my transactions, and potentially make decisions on whether purchases were necessary or not, and if that was someone with the authority to do so, potentially limit my spending. This is a fear expressed by both Ally Fogg in his article for the Guardian this week, and by Tentacle Sixteen in his blog post.  Items such as Sky TV are  as luxuries to many, for the likes of myself, these things are a lifeline I can ill afford to lose. I spend much of my time indoors, and so spend a long time using wireless internet making purchases I would be unable to do in person for all sorts of reasons including, lack of energy, not enough care time to have someone with me, an inaccessible shop (Hobbycraft for one…). There is the updating of this blog, and so on, including social media. Not to mention the articles I write, between other things, which give me a purpose, and something meaningful to talk about when friends or others ask me what I fill my time with. Again, this to me is a lifeline. I very much rely on my friends. I have basic television and broadband subscription  but spend more on telephone and mobile (I’m sure you’ll understand why, if you’re a regular reader…!)

Also, what about larger purchases? This laptop is dying, as is my ‘spare’ wheelchair. Both are very much necessities  It is already hard to save up for these things, as savings are penalized if above a certain level. When DLA is replaced by PIP of course it may become impossible to make those savings in the first place. Who’s to say what is and is not necessities  If the washing machine, a smaller model to fit under lower work-tops and three times the price (at least) of an ordinary machine, bye-bye new laptop and essential assistive software.

Next we come to a thorny issue, which I have already touched on: privacy. Will all the purchases be visible by another person, and what if the card is lost or stolen and accessed by another. What about the risk of fraud too, if only a pin number is necessary. It will, according to some, also identify benefit claimants as such, many already under pressure from increased discrimination as it is. Claudia Wood, also writing for the Guardian this week, takes a different view and argues cards would cut, not increase this stigma.

For a fuller discussion of the issues at stake, visit Tentacle Sixteen’s blog post, and or the Guardian articles from this week, which I have linked to, above.

Story Two: The ‘Bedroom Tax’

ITV news last night (Fri 1st Feb) featured this issue and spoke to a number of claimants as they expressed their fears better than I can. It refers to Housing Benefit claimants considered to have at least one more bedroom than they need. Money is deducted from their benefits as a result, about £14-18 a week or £600 a year.Some of the people being hit really are most vulnerable  and ought to be protected, such as Claire. She has severe cerebral palsy, requires round the clock care, and has constant spasms, requiring her partner to sleep in the room next door, enabling him to be fresh enough to care for her the next day.

However, as Claire says, they will be forced to share a bedroom again. This has increased her partner’s migraines, rendering him unable to care for her, and them having to pay out for more care, relief carers for Claire which the couple can ill afford. Given the government’s attitude on similar issues, I find it difficult to believe they would realise the enormity and impact of such a situation. The government reply to this, was it’s tough, but tough decisions have to be made, and people should just get on with it. Sounds a valid argument, but yet more pressure heaped on the heads of people all read pressed in on every side. Remember the ‘compassionate conservatism’ mentioned by ‘Dave’ at the Conservative Party Conference in 2012??!

This is not a situation that now affects me, however, were I to need live in care in the future, on an ad-hoc basis, or be married and have a partner/carer unable to sleep because he’s being hit and kicked, or affected by problems with my bag, it doesn’t bear thinking about! My heart goes out to Claire and her partner. I just hope this Government sees sense before it is too late.

who cares?

Thursday’s prompt…

As I said on Thursday, I’m inclined to write about ‘daily prompt‘ posts the day after or later, in part due to the time difference. Anyway Thursday’s daily prompt suggested writing an op-ed’ to a news story I’ve been thinking about. I think the translation of ‘op-ed’ here would be ‘editorial comment’. I meant to write this sooner, but for various reasons I haven’t… and I’m still thinking about it… so here goes!

New spin, on an old story…

I’ve just looked up the article and realised it was published ten days ago, but for reasons that will become clear it’s still relevant. I first saw this story when @ChrisClose50 tweeted the link, with the comment. If I’ve been really clever you should see his tweet in it’s original form, below!

 

At first, I didn’t understand the headline at all. Apart from, it meant something bad because of Chris’ tweet. where I originally saw the story. Here’s the headline: Care homes being sold off to hedge-funds? What does that even mean? Determined to find out, I started to read.

I have to say, I still don’t know what a hedge-fund is, so why was I still interested in the story?! Said hedge-fund bought a care agency, before as it turns out, so this recent acciuision of a contract and land is nothing new. So, which care-agency does this hedge-fund own? Care UK, as it turns out. (the lot who get me up in the morning belong to ’em) NOW I’m interested.

There’s plenty to scare about this story, including that the land the current care home is situated on has been given free minus conditions. So that’s alright then, the company can be trusted just because they’re the ones with the pennies?

Here’s the rub…

Apparently not… that which haunts many a big company also haunts the big providers in the sector, and Care-UK in particular — DEBT.

six of the biggest care home owners have combined debts of almost £5bn, but the corporate veil makes thorough scrutiny of finances difficult.

Not only are they keeping worrying levels of information to themselves, the lack of transparency is also a concern… surely this means they have something to hide? Lest we forget, Care UK took over doomed ‘Southern Cross’ care homes. However, Care UK themselves are not beyond reproach… according to the article, their debt is thought to be £480m. I find this particularly worrying given the amounts they get paid to carry out contracts of care, and how little people who work in the sector get paid.  Suffolk council claims to have a ‘Plan B’ should Care UK get into financial trouble.

I hope the council does get the homes they need, and I hope it all goes swimmingly. However, we may not have heard the end of this story, and am also convinced similar sell-off’s will continue in the future, unless the Government really grasps hold of situation, which at the moment, they same wholly incapable of doing.

 

true-to-life?

To tweet, or not to tweet

When I started writing my blog I resolved to keep it as realistic to my life as possible, which meant the good the bad, and the stuff in between. It also means, not over-exaggerating things, and thinking before I tweet, or post! I am sure most of us are aware by now of the tendency a lot of people have to over-share, in part I think due to the false sense of intimacy that one can often have. We tend to forget about things like targeted advertising, which is when Facebook sells our info to advertisers, so that their ads get to the right people. Also because we are writing things down, perhaps it feels just like writing a letter or an email, but more people than just the friend(s) it was intended for read your updates, tweets, and posts. With all of that to think about, and perhaps a lot I’ve left out, how do we document what really goes on in life, especially with things like disability or chronic illness without being so negative you drag people down with you, or so polished that people think everything is ‘fine’ all the time?

 

‘One of those days’

Today was one of those days where I think, “how did I ever do all ‘this’ on my own for three years?? ‘This is getting up, a shower, getting dressing changing my stoma bag breakfast, taking my medication, getting ready to go out. Sounds simple enough? Try adding in it being ‘one of them mornings’ like everyone can have sometimes, plus the idiosyncrasies of an ill/disabled body, and all the aspects of having care, and there’s one toxic mix.

The morning started fairly well, as I got myself out of bed, with only a bit of crawling from bed as gingerly as possible. So far so good? Wrong! The (stoma) bag had ripped overnight, even though most of it had drained into the connecting night bag, meaning the ‘day bag was almost empty. Have explained all this to ‘specialist nurse’ who says it’s ‘just’ a manufacturing fault and I should use the other batch of bags. Sorry but I need every last one! This is also the only system I can use because it’s the only one with a night bag suitable for use with my type of stoma, when it’s likely to have to cope with undigested food and all the rest without getting blocked. So to do anything about the bag is a losing battle, unless I win the lottery… in which case I will commission the best in the country to deign me a bag for my type of stoma which is thin, durable, flexible, and kind to skin, as well as sticking to it, and has an accompanying night bag system than can come with my peculiarities. 

None of this being an option, we had to deal with what was in front of us, so we changed all the parts of the stoma bag before I showered. Unfortunately, the bag refused to stick, so we had to start over. This combined with other issues, meant my carer call was longer than 2 hours, just for a ‘morning call’ when I am only allocated an hour and a half! Obviously, I was utterly exhausted after all this and relieved to have a break before I went horse-riding. I started writing this, and got myself ready to go out. This means plenty of planning ahead.. a healthy lunch, that I can successful digest, plus my medication dispenser fondly known as the “UFO, my plastic beaker, and all the rest of the ‘stuff I can’t go anywhere without.

Today, transport went surprisingly smoothly — result! This time I used a social enterprise company. The only firm that will drive me the two miles while I’m in my electric wheelchair. Any other refuse, or I have to use a ‘normal’ taxi with my little manual chair, which makes me completely dependent on others. Having got to the social enterprise where I learn with no incident, it was time for my ‘team’ to swing into action. The woodwork shop have made me beautiful steps, complete with handrails to help me get to the ex police horse without being lifted like before (health and safety ‘MARE as I’m sure you’ll appreciate/! Now my friend helps me climb the steps and supports my trunk enough to stop me falling, while someone else drags my leg, now rendered immobile, over the back of the saddle, while someone else keeps the horses head still… mission accomplished!! Loved it today… was almost tropical weather, beautiful views, and great company. Me and the ‘team’ got me back into my chair without incident as well, which is an absolute JOY given how painful it was before. Don’t get me wrong, it is flippin’ painful now, but at least there are less steps in the process and less risk involved — HURRAH!

I ate my healthy lunch, and socialized without incident, making it home with home with help from the social enterprise again. So far so good… now to get on with this blog, writing for something else and catching up with things. I was totally wrong! I spent most of the afternoon waiting for the district nurses to arrive to help me with the bag. No one knows what to do about any of this as I am all out of options. As I sat here now, the bag the nurse(s) put on hasn’t stuck so my stomach is covered in my lunch or dinner. I am refusing to look. My skin around the stoma is already red-raw and throbbing so it’s unlikely to get better from this wither. Feels like a wasted afternoon and evening. I have between 30 mins and an hour to get more productive things done, starting now! Wish me luck… I think I might need it!

A profession for the future?

I don’t always make time to read a newspaper, but since I bought a kindle, I’ve got used to reading the kindle version of The Independent. A couple of  opinions on how best to shore up social work for the future have really got me thinking. I’m sure some people have will have heard of Teach first? Now the idea is being applied to social work. I have mixed feelings about the sustainability of such a program, however surely things cannot get much worse, so it has to be worth a go! Josh MacAlister rightly says, social work “does not have to be one of Britain’s least appealing careers”. Neither however, do careers in the care profession! I just wonder if this concept were applied to ‘caring roles’ if it would revolutionize the profession, or whether even that may not be enough. I’d love to hear your thoughts on this. How do we take ailing professions and turn things around for the better? The Independent’s editorial is favour of MacAlister’s approach. I would encourage you to read it, and vote! 

 

Back to Social work. I hardly need explain why change is necessary as mistakes make within the profession have been well documented. The most vulnerable youngsters have been let down time and again, just like the young man MacAlister writes about. It’s a great idea… the best candidates, the best training. and straight into leadership/management. Heaven knows the most difficult professions are where the best manages are needed, and starting with children, where the most impact can be made seems like common sense. I really do hope this program achieves all it sets out to do and can be sustained for the future. It can’t come a moment too soon.

Get ready for work: what woman who needs constant care was told | Society | The Guardian

The Mind boggles:

HOW could an ATOS medical have declared this lady fit for work? It’s just horrifying. Surely she should have been exempt from a medical, having qualified by gaining 15 points on the first question that asks how your disability affects you, or in this case how it affects the person who the benefit is being claimed on behalf of?! Even if that were not the case, one look at Ruth says she’s not capable of work! Here’s the link to the article, and interview with Ruth’s mother:

Get ready for work: what woman who needs constant care was told | Society | The Guardian.

“I am blaming the system that allows people with disability to be targeted, to be made to feel as if they are a burden on society” (Ruth’s mother).

This should NEVER happen again, BUT…

It’s incredibly heartbreaking to watch the video.  Ruth should be betting the best of everything, not being held ransom to unrealistic targets. Anyone with two brain cells can see that surely? Kudos to Ruth’s mother for remaining dignified throughout the interview with the guarding, and for her love and compassion for her daughter. She too, should be helped and supported, not subjected to further demands. How has this government got it SO wrong? I don’t want to say too much more and detract from Ruth’s story. It is one that deserves to be heard, and acted upon urgently so that nothing of this nature happens again. However, I fear the people who most need to listen are the last people who will.

the joys of being ‘cared’ for….

To blog, or not to blog…

I have no idea whether the subject about which I am writing is often blogged about or not. It certainly has an image problem, as Lawrence Clark suggested in his recent blog for the Indy’s notebook. It is also something which concerns all of us. Someone (I can’t remember who) made a comment to me recently about paying their taxes towards it. I much prefer those jokes to news articles shouting about how much it costs (or will cost) the nation in future years. There have also been articles written about problems within the industry, such as the low wages for long, difficult hours, high staff turnover, (3 staff trained partly for my specific needs are about to vanish!) and lack of organisation. As I do not wish to get any person or organisation into trouble (or indeed myself) I shall not name anyone who is currently working ‘with’ me. I say with, because not only do the best ‘carers’ care a lot, there is also, for me a sense of being in something together, and with the very best ones, copious amounts of banter. Take this morning, for example….

Another morning, with another bugger

Carer A is someone I am incredibly fond of because I like them as a person and because of the startlingly good job they do. I shouted through if they wanted the good or bad news, and they said no news … that I should wait while they prepared themselves (for the headlines). Little things, but makes a big difference. I asked them what they would do when they leave, that they would miss me. They wouldn’t be able to tell anyone they were ‘bloody useless’, for example. His reply, that he would ‘find another bugger’. This is how the morning progressed. The difference it makes however, is huge. I am starting the morning with a smile on my face and a giggle in my throat. As opposed to concentrating on the pain or discomfort, or how hungry I am because I started a d-i-e-t today!!

Thankfully, they don’t all move on to better and brighter things…

Carer B is one who is not leaving, with whom I have similar banter, and who is likely in the coming weeks to moan about having too many hours with me because so many others have buggered off. With whom I will have coffee ‘alfresco’ and catch up on our news after her holiday. A cross between a friend and a carer. A difficult tightrope to walk (or wheel). One who I am happy to introduce to my friends and who all my friends love too. I do not think she gets paid nearly enough for the privileged. As she says, she should get paid at least double for the misfortune of working with me!

‘PA’s’ or ‘carers’?!

Another debate is one for disabled people themselves, whether to employ their own PA’s and struggle to find staff or to have a care agency come in, and all the associated pitfalls. Martyn Sibley is a prolific blogger who has written about this same subject. He chose to have PA’s as it gives him more choice and flexibility. In a ideal world, this might be the route I would prefer, but having had PA’s I’d rather at this moment in time not to have to deal with the paperwork, which makes me feel lazy. Actually though, I’d rather use my energy for other things. Which means, I only have flexibility with the better carers, and I only have banter with the best of them … before they leave. Unless they have dependent children, in which case, they need flexible hours and have no choice but to stay.

It doesn’t take a genius to realise that, (to use another cliche) the current government are shooting themselves in the foot. To truly provide for our future needs, we should invest, invest, and invest again… in more pay, better conditions (such as the abolition of ‘zero hours’ contracts) and in better training in order to attract (and keep!) the best staff for the long term. As it is however, carer A is leaving to work in a branch of a well-known pizza restaurant because it pays more money than care work. Honestly, how is that ever right, even in a recession, that pizza makers are valued more highly than care workers?! Surely this perfectly illustrates why we have some of the problems we have? The world and his uncle (or Auntie) has opinions on this subject, and so here are mine! Am off to enjoy my one day without ‘afternoon care’, a ‘sit’ or ‘respite’, whatever-the-heck-you-choose-to-call-it.

 

26th August 2012

An aside … to do with the leaving of bread(cake) on roof of car…

Carer C and I were playing a game of sorts today trying to come up with all the things she would and wouldn’t miss about our job. She reminded me of one of her highlights! How could I have forgotten that last week, we made bread and the next day I asked her to take however much she wanted with her. That day, as she was leaving, she put the bread on the car roof before she got in the car… only for some local teenagers to stop her and yell about the ‘cake’ on the car roof. She said the look on their faces is one she’ll never forget. This story is one I’ll never forget. I have as much banter with Carer C as I do the others… and I will miss her much *sob*