Syal sticks up for disabled people!

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I posted the following on my Facebook page today as a ‘status’ but then decided what had been said merited further thought, so I decided to write something here. The following is what I wrote on Facebook.

While I was watching the Andrew Marr show today, I heard panelists talking about £1bn being lost in tax avoidance because companies are now conducting are their affairs through Ireland. Meera Syal then said “I can’t believe nobody’s doing anything about it, given that I know at least 3 or 4 ppl who are literally on the breadline because their disability benefits have been cut.” When you put it like that, it shows just how inconsistent the Government is being, especially when you consider that ‘Dave’ talked about ‘Compassionate Conservatism’ at the last party conference. Where is your compassion now, David Cameron?

I listened to this part of the programme a couple of times to type exactly what Syal said. Listening to the rest of the discussion, I quickly became disgusted as her fellow panelist seemed to casually dismiss what she said. Only Nick Robinson (standing in for Andrew Marr) attempted to discuss what Syal said, he too brushing it off by saying that at least politicians were ‘starting to’ realise what was going on, and talk about how to sort it. Sorry, but they could talk about it forever more but that doesn’t mean the problem will be solved. The other panelist then talked about how the companies would say this sort of inconsistency was down to the Government and the law-makers, and is about getting the balance between bringing in money from taxes and lowering corporation tax so that these companies could work from this country, but without addressing the inequality which Syal had tried to bring their attention to. Syal then said this situation was ‘immoral’. However, Robinson was keen to move on, asking the other Panelist to begin discussing the next story of interest. A little later in the program Robinson interviewed Theresa May, largely concerned with the fallout from the shooting of the soldier in Woolwich. May claimed Cameron ”has a grip on the terror laws, reducing the deficit, and a grip on reform of the welfare state” I beg to differ. as I did at the back-end of last year, both with Cameron’s approach to reform/cuts and the motives, or e-motives, behind his, and his party’s actions.

Perhaps Robinson would say there was no room to discuss Syal’s concerns; it was not in the script/autocue. However, they have plenty of time to talk about the same story over and over. Perhaps they would say it was ‘in the public interest’ to discuss this story. However, the discussion that there was surely shows the blatant lack of thought for the poor of this country. There is no escaping it when the truth is highlighted so baldly.

We ignore those on benefits and the ‘working poor’ at our peril… time will tell just what the consequences of this inaction will be. How much more can people be squeezed? Apparently the delivery of Universal Credit on the deadline is in doubt, hurrah!! Watch this space in the coming months for more comment!

p.s. if you are from outside the UK, what is the Government’s attitude towards poor and/or disabled people? What help do you/they get if any? Do you agree with how you/they are treated? What, if anything, would you do differently? If you are from the UK, what do you think?

‘Dave’s’ speech (2)

This is the second of two posts on two David Cameron’s Closing speech to the Consevative Party Conference delegates. The first is concerned with Cameron’s take the Paralympics, and people’s view of disability. In his speech Cameron also talked about something called “Compassionate Conservatism” and said that they were providing for vulnerable people.

Sorry ‘Dave’ but you don’t have a clue mate!

What does ‘Compassionate’ Conservatism actually mean? Is it just to make them sound better? From where I’m sitting there’s not a lot of compassion. Yes, Dave, I understand that you think you understand, but having one disabled child does not mean you understand what it’s like to live day my day with a long-term illness or disability. I’ve had a disability for almost 30 years, and been ill for at least the last 10, and there’s so much I don’t yet know about disability. For example, I couldn’t pretend to know what it’s like to live with even a moderate learning disability. Also, when Ivan was alive, the Cameron’s won’t have been at the mercy of the complexities of the welfare state. Most problems are easier if you have money to chuck to chuck at it, including the provision of high quality specialist care.

As far as I can tell, the conservatives have this idea in their heads that they are providing for those in ‘genuine need’ and so being compassionate, while encouraging everyone else, to get a job, which they think is best, as work, rather than benefits pay, and so they are being compassionate. The reality is that it is not just the Ivan’s of this world who are unable to work. It is quite right that people who have his level of disability should be given the very best, but can the country afford it? There is a complex mixture of people who are unable to work, but the benefits system is too inflexible to recognise this. As a dear friend said recently, it is impossible to compare two people, even those with the ‘same’ condition/impairment, or a ‘similar’ level of disability, but for the purposes of doling out finite resources, there needs to be a way found of comparing people with money being distributed as fairly as possible. Yes, an absolute minefield!

Even where one does qualify for what is called the ‘support’ group of Employment and Support Allowance (ESA) as I do, the form is a peculiarity in itself, as it is designed to trip people up, and the system is designed to recognise specific words and phrases as being associate with corresponding levels of need, and so it is best for the claimant if they fill in the form with someone beside them who knows what these specific words and phrases are and who can arrange the wording accordingly. I have been filling in forms for government since I was 18, and even with two degrees, I required the help of a friend who hold a senior position at a local social enterprise to be able to fill the form in correctly. My friend asked me for absolutely minute detail. For example, where was the pain, how long does it last, how often does it occur, how severe is it. which tablets help, and how much of the pain do the tablets take away. What are the side effects I suffer from of the pain relieving medication, and how does one medicine interact with the other. We had to do this for every place I have pain. When writing about how the fatigue affects me day to day we had to write in similar detail, for example, how often does it confine me to bed; how often does it limit my level of activity, and in what way? What impact did this have on my mental wellbeing. It was the same with the problems with my ileostomy bag, other medical ailments, how my cerebral palsy affects my mobility, dexterity, how my independence has been gradually chipped away… and the rest! We ended up with at least three double-sided blank pages of closely written extra information. The whole exercise took the best part of three hours, and left me utterly exhausted. When my friend left, I took to my bed for the rest of the day!

The form also required me to list every professional I see, and at the time I think I had a list of about fourteen! Every time I lose one, there is usually another to replace them! Not only this, but all the names and address and phone numbers of each of the team of people. It was the same for each subsequent question; so much was required. Even then, I was at the mercy of someone reading all this information who was able to process it all and understand the impact of everything on my daily life, and which group this placed me in. Obviously as a Christian, I prayed before the form was posted that such a person who be the one to assess my level of need. You might think that all this effort may entitle me to support for at least a year or two…. wrong!!

Compassion?! What Compassion?

Every time the benefits system is altered I am at its mercy. There are new forms to fill in, new benchmarks for the different levels of need, and fresh understanding required to fill in each form. To be constantly required to use my precious limited energy on all of this is, for me, a hallmark of a lack of compassion, and also, a pointless exercise, as it means telling the Job centre or Department for Work and Pensions, who they already ought to know. I understand that they have to know who is in need tobe able to determine who is not, but it is not as simple as this, and therefore, one system does not fit all… therefore even the very words universal Credit strikes fear in my heart. As I have described in some detail, it is hardly possible for one system fit all, as each individual’s level of need varies, and yet to “make work pay” it has been deemed necessary to lump those who are not working together. From next April, the reassessment fun will begin again, twice over, for “Universal Credit” and for the new Personal Independence Payment (PIP) which replaces Disability Living Allowance (DLA).

Every time the system changes, so does my income as I am entirely dependent on the state. Obviously as a Christian who attempts to live out her faith on a daily basis, I know, and have to trust my heavenly Father that he knows what I need and will provide. This week, I lead a bible study focusing on the first four chapters of the book of Esther. This book is about a women who battled with her circumstances, and won, with the help of her God. An appropriate study for me to lead, as it turned out, because the opening question asked which factors in each of our lives we out with our control, and how did it affect us. Of course, the natural answer for me, aside from my illness and disabilities (impairments) is my level of income. This was something of an eye opener for the group, who being caring people began to feel sorry for me as say things like “but surely this does not affect you?” the assumption being that I would quality for support with ease, and so not have anything to worry about. Once I explained, however, that the system changed regularly, and with it my level of income, they understood that this was indeed something out with my control, and therefore something I had to trust the Lord with. They had compassion.

The One with the MP

A number of months ago, as the forthcoming changes were being first discussed, I was, naturally unsure what the changes would mean for me personally. One Saturday, as I was in my local supermarket, I noticed my MP was holding a surgery, so I duly waited in line. My MP listen intently to my story and my questions, as an intern or assistant took notices, and tried to understand my situation. He assured me, as Liberal Democrat, that he was prepared to stand up for sick and disabled people in his constituency, and he would be seeking assurances from his colleagues in Government, that people like me with a genuine need would be provided for. As promised, he wrote to the then Minister for Disabled People, Maria Miller, seeking assurances to that effect. Ms Miller’s answer to my MP was a clearly photocopied stock answer which parroted out the propaganda now associate with this Conservative government, that the forthcoming changes with necessary in order to encourage disabled people, of which I was one, into work, with no acknowledgement that there would be those who could not work, however much they might like to. One had compassion, the other did not. I will leave it to you, to decide which!

What does the Bible say about ‘Compassion?

There are many reasons for the current Government’s lack of compassion, some of which I have outlined above, and partly springs from a lack of understanding and from not knowing the everyday reality of life for someone like me. However, their very understanding of ‘compassion’ may be questioned. In his speech. Cameron was talking about a type of compassion, compassionate conservatism. Surely if they were truly compassionate this would be apparent in every policy this government introduced. however, as I have explained, I am doubtful that the current Government even understands what ‘compassion’ is. I am privileged to know One who does know what compassion means, and that’s the Lord Jesus. There are many scriptures I could quote here, but the one that came to mind first was when Jesus fed the five thousand.

Jesus called his disciples to him and said, “I have compassion for these people; they have already been with me three days and have nothing to eat. I do not want to send them away hungry, or they may collapse on the way. (Mathew 15:32 NIV)

Here, Jesus saw a need he could meet, and dud so, out of the abundance of his love for the people. It may sound obvious, but hungry people need food, In this country, there are people going hungry who do not have food. One example of an organisation trying to meet these needs is the Trussell Trust, who say “Rising costs of food and fuel combined with static income, high unemployment and changes to benefits are causing more and more people to come to foodbanks for help.”If the Government is compassionate, why are people going hungry? To me, this is yet another illustration that they do not know the extent of the need in their own country.

‘Dave’s’ speech, (1)

Dave’s speech, and the ‘legacy’ of the Paralympics

David Cameron’s closing speech to the conservative party conference has already been talked of and analysed a great deal. I would like to chip in my pennyworth. I started to write about two of the main subjects of David Cameron’s (‘Dave’ to you and me) closing speech to the Conservative Party Conference: The ‘legacy of Paralympics; and something called ‘Compassionate Conservatism’. However, there was so much to discuss I have split it into two posts.

 

‘see the boy, not the wheelchair’

Regarding what Cameron had to say about disabled people and the much talked of ‘legacy’ of the Paralympics,  he talked of both sporting achievement and the change the games made to how disabled people in this country are viewed. To illustrate the latter, he talked of his late son, Ivan and how [he] “always thought that some people saw the wheelchair not the boy. Today more people would see the boy and not the wheelchair, and that’s because of what happened here this summer”.

Others including those who were responsible for bring the games into being shared Cameron’s view. “Paralympic organisers hailed “the seismic effect in shifting public attitudes” to disability sports claiming the Games had changed public perception of disabled people forever”. (The Independent – 14th September 2012) I agree with Cameron to an extent, but not with the sweeping statement from the organising committee!

The Paralympics did indeed change some people’s attitude to disability, and disabled people, especially the younger generation, which I wrote about a few months ago. It makes for an interesting read, and shows that there is hope you the future, if the legacy is handled correctly, but really, have we seen much evidence of that so far? The general public’s view of disabled people may have changed superficially, but a lot more work needs to be done.

 

‘Hate crime’ and the Paralympics

In an article in the Independent from the 14th September 2012 talking about the link between a dramatic rise in hate crimes against disabled people, Scope, a charity working with and for disabled people said:

“Our polling has shown that attitudes towards disabled people have deteriorated over recent years and that many disabled people experience harassment, hostility and abuse on a regular basis. We know if unchallenged these low-level incidents can often escalate into more serious crimes. “

There is a clear disparity here between perception and reality. Until Cameron can be more realistic about the reality of what disabled people face in their everyday lives, little is likely to change.

In the same speech, Cameron talked about how the Paralympics enabled people to dream of achieving things in sport and to be Paralympians. However, this is not realistic for the majority of disabled people.  As far as I’m concerned,, some of it was rhetoric designed to justify budget cuts. It’s like saying, if the Paralympians are achieve great things, then so can most other disabled people, therefore anyone who doesn’t is not trying hard enough, therefore, if you don’t try harder to achieve, your benefits will be cut. For me, some days just being up, dressed and medicated is an ‘achievement’ in itself, and the effort of which can and does send me back to sleep. This happens despite having carer’s help to do all these things.

Also, when he talking about how their should not be any barriers to achievement, and named a number of groups of marginalised people, and said none of these groups should be stopped from achieving, but he did not include disabled people when claiming the Conservatives were the people’s party!

“My mission since the day I become [Toy] leader was to show the Conservative Party is for everyone: north or south, black or white, straight or gay”

As with the public’s attitude to disabled people, more work is needed before disabled people have the same opportunities as others, and would then be free to ‘aspire; to whatever they wanted to, including Paralympic sport!