GPs must treat foreigners under new guidelines | Mail Online

I first saw the following headline as I passed the Newspaper display in my local supermarket, and halted my chair in shock! The following is from the Daily Mail, on the 13/10/12. Click the following link to read the article: GPs must treat foreigners under new guidelines | Mail Online.

I have no doubt we will hear much story in the coming days, from every possible angle. However, as someone with a long-term illness and a long-term disability, I am astounded that such a decision could be reached while leaving common sense at the door. For m, this one is the latest in a list of CRAZY decisions about the NHS… and we have to take action while we can. Id love to know what you all think of this decision.

‘Dave’s’ speech, (1)

Dave’s speech, and the ‘legacy’ of the Paralympics

David Cameron’s closing speech to the conservative party conference has already been talked of and analysed a great deal. I would like to chip in my pennyworth. I started to write about two of the main subjects of David Cameron’s (‘Dave’ to you and me) closing speech to the Conservative Party Conference: The ‘legacy of Paralympics; and something called ‘Compassionate Conservatism’. However, there was so much to discuss I have split it into two posts.


‘see the boy, not the wheelchair’

Regarding what Cameron had to say about disabled people and the much talked of ‘legacy’ of the Paralympics,  he talked of both sporting achievement and the change the games made to how disabled people in this country are viewed. To illustrate the latter, he talked of his late son, Ivan and how [he] “always thought that some people saw the wheelchair not the boy. Today more people would see the boy and not the wheelchair, and that’s because of what happened here this summer”.

Others including those who were responsible for bring the games into being shared Cameron’s view. “Paralympic organisers hailed “the seismic effect in shifting public attitudes” to disability sports claiming the Games had changed public perception of disabled people forever”. (The Independent – 14th September 2012) I agree with Cameron to an extent, but not with the sweeping statement from the organising committee!

The Paralympics did indeed change some people’s attitude to disability, and disabled people, especially the younger generation, which I wrote about a few months ago. It makes for an interesting read, and shows that there is hope you the future, if the legacy is handled correctly, but really, have we seen much evidence of that so far? The general public’s view of disabled people may have changed superficially, but a lot more work needs to be done.


‘Hate crime’ and the Paralympics

In an article in the Independent from the 14th September 2012 talking about the link between a dramatic rise in hate crimes against disabled people, Scope, a charity working with and for disabled people said:

“Our polling has shown that attitudes towards disabled people have deteriorated over recent years and that many disabled people experience harassment, hostility and abuse on a regular basis. We know if unchallenged these low-level incidents can often escalate into more serious crimes. “

There is a clear disparity here between perception and reality. Until Cameron can be more realistic about the reality of what disabled people face in their everyday lives, little is likely to change.

In the same speech, Cameron talked about how the Paralympics enabled people to dream of achieving things in sport and to be Paralympians. However, this is not realistic for the majority of disabled people.  As far as I’m concerned,, some of it was rhetoric designed to justify budget cuts. It’s like saying, if the Paralympians are achieve great things, then so can most other disabled people, therefore anyone who doesn’t is not trying hard enough, therefore, if you don’t try harder to achieve, your benefits will be cut. For me, some days just being up, dressed and medicated is an ‘achievement’ in itself, and the effort of which can and does send me back to sleep. This happens despite having carer’s help to do all these things.

Also, when he talking about how their should not be any barriers to achievement, and named a number of groups of marginalised people, and said none of these groups should be stopped from achieving, but he did not include disabled people when claiming the Conservatives were the people’s party!

“My mission since the day I become [Toy] leader was to show the Conservative Party is for everyone: north or south, black or white, straight or gay”

As with the public’s attitude to disabled people, more work is needed before disabled people have the same opportunities as others, and would then be free to ‘aspire; to whatever they wanted to, including Paralympic sport!

A slow start, to a slow Monday

Apologies for the lack of posts of late. Have had a big change to my medication regime which makes me feel poorly all the time. I’ve also been writing my next post for Big Bible which will go live later today. Wasn’t able to write that for falling asleep. I had Friday to early Sunday to write those 600 words, but it took me all of that and more the amount of time it took me to wake up and everything. I’m off in a bit to phone Virgin Media and ask for a new router. I don’t know how many times I had to switch it off and unplug it over the weekend. This post comes to you courtesy of a monitor borrowed from my parents. I must have dropped my laptop a hundred times in 6 years with no apparent damage, and then this last time I busted the screen.

Off to find a caffeine shot or something to get some energy into these tired sickly bones…

This was the week that was The One With the Wedding

The beginning is a “jolly good place to start”

What a week this one was! Really don’t know where to start! Monday started with travel woes though. Not actual travel, just the woes… and panic about if I would be packed in time, when the parents had already packed a lot of my stuff two days before… you get the gist!!

Might have had something to do with the start to Tuesday though! Texting one half of parental unit at 5am as was crawling around in back-related AGONY. Doesn’t matter that said parent (Dad!) didn’t have time to read it till 9, I felt a weeny bit better having sent it. Cue panicked phone call a few hours later,. in which I tried to comprehend not going to only-b(r)other’s wedding. Phone call to doctors surgery went rather well I thought… till I tried to lock the door, phone care co-ordinator and drive my electric wheelchair on full speed at the same time. Had never asked for sit and wait appointment before, but knew they existed as I have a friend who asks for those often. I got seen within 45 minutes by a doctor who knows how complicated I am, and in which appointment we tried to work out which medication regime would be less harmful… don’t try it, it hurts my brain just thinking about it. My carer having met me at the doctors surgery, I bolted home at full speed trying not to wince too much before jumping in the car to speed round to the hairdresser. I thanked them for shifting the appts half an hour later, and they told me to take a deep breath and calm down, as I “looked like I’d had a bit of a morning”!!! One consultation later, hair colour applied, I could finally breathe! Spent the rest of Tuesday trying and failing to feel organised.


The ‘actual’ Travel, rather than just the ‘woes’!

Wednesday morning arrived all too quickly. Cue more speeding around, by the carer not me! I being aided by a well-known brand of pain-and-person-sedative. I dread car journeys at the best of times, but this was worse, as I’d had a nightmare the week before, which I reckon was a medication created hallucination that involved a car crash and ambulance helicopters! I could even hear the helicopters, which was even scarier. The memory of this lingered still. Knowing all too well what I’m like, my parents had very helpfully split the journey in three. The first part passed without incident, and included a stop over at Granny Edna’s house. 🙂

The next morning, after an early start, we were off to the other Granny Edna to collect the fascinator she and my ‘Auntie’ P had found in a florists in Arbroath. Panic not, this one was far more tasteful than the Philip Tracy monstrosities worn by either of Duchess of (i forget her name…) I nearly wrote princess Anne!! Please forgive me, it’s Monday. Beatrice and Eugene, that’s them. After lunch it was off up to Aberdeen too a VERY posh hotel called Ardoe House. After a room inspection we trooped off back to reception to ask if they had anything more accessible. Having been told that WAS their accessible room, I insisted we should make the best of it. I have since considered writing a review on “TripAdvisor” but it most people wouldn’t understand what “visitable” by a wheelchair-user, not fully accessible” means. Said room was a bath, not a walk-in-shower, horrors! I reasoned that at least the floor wouldn’t get flooded, and the bath was low, handrails were also unusually steady and in helpful places. All of these things make a huge difference. That, and the bed was so comfy it meant taking less head-swirling painkillers, always appreciated. The evening was a meal out at Rustico’s. A very lovely Sicilian Restaraunt in ‘A-berdeen’, apart from the two floor stair-climb. However, the loo was surprisingly accessible, especially given that it was at the top of two flight of stairs! still, full marks from me! Very lovely meal, with great company. Great to get to know my almost-sister-in-law, her family and most of the rest of the Bridal Party.


It’s here, Already

Finally, finally, the much anticipated day arrived, horribly early. It was lovely to get caught up in the excitement getting my hair and make-up done by lovely people the bride has known for years, and to get to know the Bride and Bridesmaids more. So relaxed, and so much fun. I’ve only been to a couple of registrar-officiated weddings, but this registrar seemed to rush through it, and didn’t know the bride and groom, which felt rushed and impersonal, at least to me. She left, so that my Dad could give the (unofficial) non-legally-binding Blessing. Wedding done, time for the photos. The award-winning photographer was ace! I managed to succeed in standing for the family photo (with five of us Squeeeeee!!) but almost succeeded in falling backward after… scaring the bride. Thankfully my Mum, caught me!! The meal later was lovely and the staff were SO attentive and helpful, helped make the day. I managed half of the Canadian Barn Dance in the Ceilidh even if I could barely stand after! So pleased though, as it’s one of my many favourites. Just happens to be my favourite-favourite. Lovely to catch up with my bestest-school-friend and some of my parents friends in the evening. Just realised I’ve neglected to mention the speeches. They were amazing, but doesn’t everyone say that! Such a good idea to interspersed speeches with courses of the wedding-banquet. I lasted until the very end of the evening which suprised everyone including me, especially given my #Spoonie ways 🙂

Saturday was a huge anti-climax given the excitement of the day before. We checked out of lovely Ardoe house and headed for Edinburgh to chill out and eat Takeaway. Sunday arrived, with me feeling even more tired than the day before, having had to call through to the parents in the middle of the night for water and painkillers. I still couldn’t move, even one baby movement at a time. horrendous! Thankfully, I made it to my Gran’s church eventually. So loved catching up with her friends, and some of my own. Just lovely to be at a different church for a change and hear a different perspective on two parables I had recently studied in my own church in Leeds. After that, we headed to the car for the journey south. However, this one was long, wet and foggy, in which I relived my hallucination or nite-mare or whatever-it-was. Our lunch stop was at Berwick  Garden Centre for lovely food. Scampi and chips are my ultimate comfort food, (brings back so many memories as well) followed by millionaire shortbread and tea (aka caramel shortbread/cake. What’s the difference (if any!) between shortbread and shortcake?


We eventually got home, it seemed to take an absolute age, compared to the journey up. It won’t have helped that I was squirming in pain. Potentially ‘payback fatigue from Friday’s shenanigans. So painful though, but entirely worth it. Today I’m sort-of-almost-nearly back to normal. I’d love to be off back to bed though! No chance, have spent all my nap-time writing — FAIL! I once watched an excellent Beeb documentary on sleep. I’m sure it said between 8 and 10 am that the heart is vulnerable to attacks (boo!) but that this is also the best thinking-time. It is definitely the time when I find my writing flows best, unless it’s one of those (many) days when I end up back in bed after my carer(s) have left. I’m off to edit this and brew moreTea Pigs Chai tea! LOVE it, the best I’ve found, and my favourite nausea cure. Until next week… (or tomorrow!)